It's Been Less Than a Week!

A few minutes of time for writing. It's been less than a week since last I posted. What's wrong with this picture that I'm here so soon? LOL

In the past five days or so, Ron's skin condition has deteriorated rapidly. The prednisone is no longer effective. Whatever it did last week didn't stick. He has been in intense pain. The itching seems milder, but I suspect it's because he is overwhelmed with how much it hurts. We have used creams, cortizone, Bactine -- you name and we've tried it. The problem is that the lesions are caused by something internal. It's not like poison ivy or sunburn which would respond to topical treatments. It's like shingles, only worse. Doctors are still saying it's drug-induced lupus. He still has none of the symptoms of that but does have all the symptoms of Bullous Pemphigoid. I'd never heard of it until I got into heavy research. It's a nasty thing.

Yesterday we returned to the dermatologist so he could take yet more skin for yet another biopsy. The doctor was shocked at how much worse the "condition" is since he saw him last Thursday. He prescribed a pain pill, more prednisone and an antibiotic because Ron's skin is breaking open into wounds and we're afraid of infection. It ain't pretty.

The pain pills may be working. Frankly, Ron isn't sure. He says there is no pain when he's laying totally still, which is a new phenomenon, but there is pain when he moves around. He seems better though. He is talking more, laughing some and generally is more himself.

We picked up my new washer yesterday. Who knew that some day I'd be driving the truck that went to the GE warehouse to get my own washer. ::sigh:: So much for being a lady of retired leisure. I've named the washer Mary Jane because "she" is just that -- a simple plain white washer that will do the job. I suppose if my washer/dryer sat in the living room I'd want something fancy and colorful, but it sits in the cellar. Hmmmm, wonder if they have washing machines the color of cobwebs? The machine probably won't be installed until Friday or Saturday. Ron can't do it so has to call for help.

I had Em Tuesday. We had a good time at the playground in Green Island. There were two other kids there and Em played while I talked to the mom and dad. When it was time to go, Em willingly left without complaint. She also took a two-and-one-half-hour nap in the afternoon. What a gift!!

Tony is bringing his girlfriend, Brianna, to dinner on Sunday. I don't know what prompted his asking, but since it appears their relationship is serious, perhaps it's time. I'll have to do some major cleaning I suppose and then cook! ACK!!! LOL I've seen a couple of pictures of her. She's very pretty and looks much younger than her age, which, apparently, we don't talk about -- age that is -- being that she recently turned 30. Ha! Wait until she's pushing 60.

Tomorrow is another Ember day. It's supposed to rain. Maybe we'll go back to the Children's Museum in Saratoga. On Tuesday she asked if we could go to the "music place.. the moozam place."

Weather - It's gone down hill since the weekend. Tuesday was sunny and barely warm. Yesterday it was downright cold and rainy. It's supposed to rain today and tomorrow too.

Gas prices - They're steady at a way too much price: $2.45 a gallon at Glenmont Cumberland Farm.

Random Thoughts - Will Ron ever feel good enough to take care of the yard? Why is it that this old house never looks clean and neat no matter what I do? Mica's graduation from high school is June 26, and there is a party after at Maureen's. I hope both Ron and I can go.